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But in Jordan, MSF is not able to meet the specific long-term and often lifelong needs of very seriously injured patients. вFor patients with spinal cord injuries, quadriplegia or paraplegia, the treatment they need is beyond our current capacity,в laments Ahmed Al Salman. Unfortunately, several establishments that provided this type of care in Jordan closed in 2014 and 2015, due to lack of license to legally operate their activities. As a result, existing establishments are overwhelmed, hence buy solinitrina online urgency of opening more structures capable of offering long-term convalescent care as well as palliative care, legally. The European Medicines Agency EMA has just approved the marketing of the very first drug indicated for Duchenne muscular dystrophy. This is nevertheless a conditional marketing authorization AMM for Translarna ataluren from the American laboratory PTC Therapeutics. This orphan drug is in fact intended for 13 of patients suffering from this disease children over 5 years old who are able to walk, and more precisely those whose disease is due to the presence of certain defects in the DMD gene mutation genetic codon type вSTOPв.
Solinitrina gene is responsible for the production of dystrophin, a protein involved in muscle support. The EMA refused to grant marketing authorization to Translarna last January but agreed to re-examine the file at the laboratorys request. The latter must in particular provide complete data on the вconfirmatory studies which are in progressв. The Agency specifies that this type of conditional marketing authorization aims to provide access to drugs filling a therapeutic gap for serious illnesses, even in the absence of complete clinical data. Duchenne muscular dystrophy is a genetic disease that causes progressive muscle weakening.
It affects around 18,600 people in Europe, including nearly 2,500 people in France, the vast majority of them boys whose life expectancy does not exceed 30 years. The AFM-TГlГthon welcomes the arrival of this drug, which could also represent a breakthrough in other genetic diseases caused by вSTOPв mutations, such as cystic fibrosis. Overall assessment impossible. But, due to the security situation, it is impossible for our teams to assess the extent of the medical needs in the Gaza Strip. вBecause we cannot move, it is very difficult to assess needs,в explains CГcile Barbou, MSF medical coordinator in Gaza. " Its a nightmare. We must limit our travel as much as possible to avoid running too many risks. A dead health worker is of no use.
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